Bone anchored hearing systems 

Bone Anchored Hearing Systems (BAHS) Blog 
 Resources, advice and stories from bone anchored hearing system users.

Hear Together – UK Organisation for people with hearing implants

BAHA Users UK: Support for ALL Bone Anchored Hearing Technology – Bone Anchored User Support Forum on Facebook. The direct link to forum for users of bone anchored hearing systems.

Bone Anchored Hearing System Forums & User Groups 

Facebook - Various BAHA User Groups 

• BAHA – Bone Anchored Hearing Aids 

• BAHA users Welcome! 
  

• BAHA-Bone-Anchored Hearing Aid 
  

• BAHA Support Group (Southern Africa) 
  

• BAHA World Hearing - Bone Anchored Hearing Systems

Acoustic neuroma & single-sided deafness (SSD)

Acoustic Neuroma Association
US organization for people with acoustic neuroma and other benign tumors of the cranial nerves.
British Acoustic Neuroma Association (Bana UK) 
A support charity for those with Acoustic Neuroma.

Acoustic Neuroma Association of Canada (ANAC) 
The Acoustic Neuroma Association of Canada is a patient-headed, peer support group.

Facebook - Various SSD User Groups: 

• SSD – Single Sided Deafness peoples of Facebook 
  

• Deaf in One Ear? Yes. 

Atresia, Microtia, Treacher Collins and Goldenhar Syndrome

Ear Community 
The Ear Community is a warm and supportive community for those who have any or all of the following: varying degrees of hearing loss, Microtia, Atresia, Treacher Collins or Goldenhar Syndrome. 

Facebook - Various Microtia & Atresia User Groups :

• Microtia & Atresia Support Group

• Microtia Mingle UK

• Microtia

• Microtia

• Teens/adults with microtia

Goldenhar 
A support charity for families and individuals affected by Goldenhar syndrome and related issues. 
Treacher Collins
A support charity for families and individuals affected by Treacher Collins Syndrome. 
Yahoo online discussion support group 
This community is intended as a forum for people with, and parents of children with Aural Atresia and/or Microtia. 
AllDeaf Forum
A forum for the deaf and hard of hearing. 

National websites

United Kingdom

Action on Hearing Loss (formerly RNID). 
The largest charity representing the 9 million deaf and hard of hearing people in the UK. 
The National Deaf Children's Society (NDCS) 
The leading charity dedicated to creating a world without barriers for deaf children and young people. 

The Netherlands 

Single-sided Deafness 
Dutch forum for people with single-sided deafness.
HOorzaken
Dutch website for information on hearing.

France 

Aides Auditives à Ancrage Osseux 
The purpose of this site is to give neutral and objective information on bone anchored hearing aids and to create contact between existing and potential users.

Sweden 

Barnplantorna 
Swedish organization for parents and children with hearing implants.

Denmark 

Høreforeningen 
Danish user organization for people with hearing loss. 

Facebook - Danish BAHA User Groups: 

• Parents and relatives of BAHA users

Get in touch with other users

The benefits of bone anchored hearing systems vary greatly from person to person due to differences in hearing loss as well as listening preferences and lifestyle. A good way to gain insight into what life might be like with Ponto or another type of system is to talk to other users. Below are some useful links for getting in touch with other users or user organizations.

Whether you are wearing an implantable hearing device or considering wearing an implantable hearing device, there are a number of support organisations with readily available information and networks. Please advise us of any additional organisations that you would like to be added to this page.